Supporting those affected by Hypo-plastic Left Heart Syndrome (HLHS)
The Heart of a Child Fund was established to offer an open forum for parents, family and anyone affected by HLHS.
Members
Daily Chat Time
To ensure we all can come together at the same time we have Created Daily Chat Hours, where if you feel you wish to talk to other members you can log on at the out lined times. Dawn will also be available as often as possible to answer your questions and offer support.
Daily Chat
Mornings 11am - 12 noon
Evenings 8pm - 9pm
Site Support Members
Need to chat? Please feel free to contact the following Site Support Workers.
Dawn Mitchell
Robbie Hedges
Fin Coughlan
The Chat Suite is just below the video section on this page. You will see your name and a list of other members who are also on line. You can chat openly in the group or privately. If you need further help please don't hesitate to ask.
This site is Free to Host and Costs The Heart of a Child Nothing but Time and Love to Manage.
Important
Notes
Sign Our Petition
Created by Dawn Mitchell Sep 9, 2009 at 8:46pm. Last updated by Dawn Mitchell Oct. 10, 2009.
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Welcome! To view all notes, click here. Continue
Created by Dawn Mitchell Sep 9, 2009 at 7:10pm. Last updated by Dawn Mitchell Sep. 9, 2009.
Welcome to The Heart of a Child
Please assist us in creating awareness of this condition both in Ireland and World Wide. Every Child is different but we at Believe Every Child has the right to Life and the best possible chances provided to suit their medical needs
After Ben died, Dawn found herself isolated, totally bewildered and clueless to what hypo-plastic was. Her grief took on a strong form of loneliness due to lack of awareness and contact with others who had gone through this. There was literally no one who understood her pain or could answer the million questions she had.
This space was created to allow you, your family and friends join and be part of a group of courageous people that share a common experience.
We encourage you to make friends, share your experiences and most of all support each other when life needs more then just your own individual strength but also strength from those that are also walking a similar path as yours. An most importantly to know your not alone.
Feel Free to Share Your Pictures, Your Videos, Your Written Memory's along with tools that can help those who need your experience.
For any Professionals that work in the area of HLHS, please do feel free to post your experiences, videos and research etc in our Forum Area.
We aim to provide you as many possible resources and us much information as we can through this site. It is made up of links that will connect you directly to other services, organisations and is updated on a regular basis. Our facebook fan page contains more information that is not always included here.
Thank You all For Joining and Caring!
Together we can make a difference.
In Love and Truth we find our Finest Moments!
Photos
Groups
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HLHS BOOKS
5 members
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The Fund Evolves
1 member
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Help Promote this Site
5 members
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Are You Expecting a HLHS…
1 member
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Hospitals for HLHS Kids
3 members
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Info on Your Organisation
3 members
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Medical Information
4 members
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Are You a HLHS Survivor?
4 members
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Have You a Child with HL…
3 members
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Have You Sadly Lost a Ch…
4 members
Videos
Chat
Sign up to chat on Hypo-plastic Hearts
Music
Blog Posts
Greetings in 2010
You may have noticed the lack of admin on here over the December Period and my sincere apologies for not been here if you needed assistance.
2009 saw the establishment of The Fund and we did truly have a great year. Our biggest success been this site and Ben's Album. Paramount to both those things is the amount of healing and letting go i have done this year with ben. Its been a personal journey too for me.
However within any setting… Continue
Posted by Dawn Mitchell on January 5, 2010 at 12:23pm
Bens Tribute CD to HLHS Children
Ben- Michael Jackson
Angel - Sarah Mc Laughlin
There You'll be - Faith Hill
Tears In Heaven - Eric Clapton
Dawn has done all her own versions of the songs and looks forward to launching it once all aspects of its creation have been completed.
Would you like to include a small picture and tribute to your HLHS Child or HLHS Angel? Please mail dawn on here if you would.
All the proceeds from the sale of this album will go towards a variety of projects, one been an information booklet on hypo to be supplied to as many hospitals as possible.
A tribute book to HLHS Angels will also be created alongest with other projects according to funds we create.
The Artist for this album Unsworth, Nicholas donated his skills and we are grateful to him for his great work.
About
Forum
Share Your HLHS Stories Here 5 Replies
Have You a Child with Hypo-plastic Left Heart Syndrome? Would you like to share your Journey with Us? Please feel free to include your stories in this Forum for other parents to read.
Started by Dawn Mitchell in Sample Title. Last reply by Nikole Marohn Jan 31.
Thank you mommy for keeping me safe while you could 2 Replies
Thank you mommy for keeping me safe while you could But I couldn’t stay in there forever even though you preferred that I would You knew I was sick even before I was born You told me you were scared…
Tagged: awareness, hlhs, chd, moms, heart
Started by David Moore in Uncategorized. Last reply by David Moore Jan 22.
They came to earth in droves 2 Replies
They Came To Earth in Droves Angels came to earth on one really hot summer’s day Too help out the sick children who needed help along the way They came to earth in droves to lay their healing hands…
Tagged: awareness, hearts, chd, nurse
Started by David Moore in Uncategorized. Last reply by David Moore Jan 22.
What Kept You Strong in times of darkness? 3 Replies
When times where low and your fears where strong, what kept you clear? what kept you strong? Share your stories of inspiration with others. We need your hope.
Started by Dawn Mitchell in Sample Title. Last reply by Ellen Christine Lazo Nov. 11, 2009.
MY love for my baby boy 3 Replies
Ethan is getting so big!!! It is getting so hard to move at times..but this is a wonderful thing. I am now 154 pounds and going strong..and its allll him!! his feet are in my back no lie..almost like…
Started by Joey Walker in Uncategorized. Last reply by Dawn Mitchell Nov. 5, 2009.
My Son 2 Replies
My Son was born on a warm summer's day With me pacing the floor in a proud dad's normal way Not knowing of challenges that were still yet to come That would change my life in more ways than one…
Started by David Moore in Uncategorized. Last reply by David Moore Nov. 5, 2009.
Stories & Poems Required for our Newsletter 7 Replies
We would like to here from you if you have any stories or poems you would like to submit to our E-Newsletter. Our News Letter is currently published at the beginning of every month. Your Experience…
Started by Dawn Mitchell in Uncategorized. Last reply by Dawn Mitchell Nov. 2, 2009.
Loosing my kids, my life, and my smile My personal HLHS story
My Struggle My wife and I tried for 10 years to have children with no luck. I was gone all the time due to my job driving cross country and it just wasn't in Gods plan yet. In July of 2003 my wife ca…
Tagged: hearts, chd, congenital, defects, life
Started by David Moore in Uncategorized Nov. 1, 2009.
Daddy Will I Grow Old 1 Reply
Daddy will I grow old to go home the first time Daddy will I grow old to hear my first rhyme Daddy will I grow old to eat my first meal Daddy will I grow old to see my heart heal Daddy will I grow o…
Started by David Moore in Uncategorized. Last reply by Dawn Mitchell Oct. 31, 2009.
Have You HLHS?
Firstly the fact that your reading this is absolutely amazing and we are honored to have you as a member of our site. We hope you find the site helpful and please let us know if there is any way we c…
Started by Dawn Mitchell in Sample Title Oct. 13, 2009.
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